Posts by Raymond Rupert MD. MBA

Posted on July 24, 2019

Study Of 4000 Cancer Patients: Meeting Their Needs

The patient perspective is too often forgotten in considerations of how cancer care can be improved. The All.Can patient survey gave us a unique opportunity to ask this question directly to those who have had personal experience of cancer. Almost 4,000 cancer patients and caregivers from more than 10 countries across the world responded to […]

Posted on June 5, 2019

True Advocacy In Action: Families Form A Buying Group For An Expensive CF Drug

Guardian June 5 2019 Parents of children with cystic fibrosis who are desperate to use a drug that the NHS cannot afford are forming a buyers club to obtain a cut-price version made in Argentina where the patent does not apply. Angry at the stalemate between Vertex, the US manufacturer of Orkambi, and NHS England, the families […]

Posted on May 28, 2019

Brilliant Science & Fetal Surgery For Spina Bifida:

‘She’s wiggling her toes’: New fetal surgery for spina bifida may be safer for both baby and mom By USHA LEE MCFARLING Stat Magazine May 28 2019 LOS ANGELES — Gilda Giron was 13 weeks pregnant and barely showing when she started to worry. Something wasn’t right with her ultrasound image. At 16 weeks, Gilda […]